Great news as funding for crucial drug Vimizim is confirmed
There will be no bigger smiles in south east London this week than those on the faces of the Brown family following news that special Lion Harvey Brown will get the life-changing drug he needs to live a longer, happier life.
Millwall FC have been a driving force in supporting Harvey Brown’s campaign to ensure he, and 77 other children in the UK get the vital medication Vimizim, they need funded by NHS England for Morquio sufferers.
An online petition was signed by over 10,00 people and the club also joined Harvey, and his school Surrey Square Primary in delivering letters supporting his campaign to No.10 Downing Street.
The tireless work of everyone involved in the Harvey Brown campaign paid off and this week Harvey's family received confirmation that the National Institute for Clinical Excellence (NICE) would be recommending that Vimizim is offered to sufferers of the ultra-rare disease, Morquio.
"This is just amazing news; I was in shock when I was first told and it still hasn't really sunk in," said Harvey's Mum Vikki.
"The only thing we had wanted for Christmas was for them to say 'yes' and now that has happened. It is just brilliant news.
"We want to thank everyone for the support we have received. It has been overwhelming."
Harvey, who earlier this week had surgery to fit plates to his knees to help his legs grow straight, will be appearing on ITN News tonight (6pm).
In the meantime, if you want to take a look at Harvey's story (and a special interview he did with Lions player Fred Onyedinma) take a look here